Flames wouldn't be eternal if they actually consumed anything.

Lilah ,'Not Fade Away'


Natter 77: I miss my friends. I miss my enemies. I miss the people I talked to every day.  

Off-topic discussion. Wanna talk about corsets, duct tape, butt kicking, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


JenP - Feb 23, 2024 3:12:15 pm PST #28851 of 30000

Yah, I often thought it would've been kinder if her dementia had been just ever so slightly worse... but the way she would always ask was for confirmation that she remembered right. Which she did.

It's such a bummer, right, ND? I've always envied that my sisters really knew our paternal grandparents, exchanged letters with them and such. I don't even remember my granddad. He died when I was maybe 2 years old.

On my mom's side, her dad died in his forties, so no chance there. I remember her mom quite well, but... she was truly awful to her children (not to us), so I never really bonded with ol' Ella.. or wanted to.

My heart goes out to all of.you who are dealing with aging parents and difficult relatives who need care and the attendant really hard parts about it all. It's hard, and frustrating, and heartbreaking, and exhausting. I'm sorry.


Pix - Feb 23, 2024 5:56:45 pm PST #28852 of 30000
We're all getting played with, babe. -Weird Barbie

I am so sorry to jump in here without fully responding to all the OMGWTFPOLARBEAR bullshit so many of you are dealing with. I will get to a point when I can offer advice on dementia management and such, but it's too raw right now. But I hear how shitty and hard things are for so many of you, and all I can say is that we are here. You aren't alone.

And now I will bitch about the thing that is making me crazy because I can't talk about it anywhere else. Caregiver J, who was so good to my dad and was in a crappy situation at first when Dad died because he has just gotten his first full time nursing job and didn't yet have paystubs to get another place, made a mistake at work and got fired yesterday. So now he's texting ND and begging him to plead to me to let him stay in Dad's condo indefinitely because he is convinced he can't find anything else to live and he will be homeless if I make him move out when he agreed to move out (March 1). He offered me $1000/month, which would barely cover costs, and, more importantly, I NEED TO SELL IT. Not only do I owe money that I borrowed during the past two months and need to pay back, that place has become nothing but a source of grief for me. I don't want him there anymore. And I already gave him $10,000 from the inheritance I will get AFTER I SELL IT and let him live there rent free January and February. I'm truly sorry the housing market is so hard there. I'm truly sorry he lost his job over what was probably an honest mistake. But I also cannot carry him. I truly feel I've been very generous and patient, and every day that goes by, the fact that the condo is sitting there, half emptied out, eats at me. ND hasn't been able to pay himself regularly in a while, and we are scraping by on my salary and the charity of friends. This has to end. And I hate that he's making me feel so guilty.


P.M. Marc - Feb 23, 2024 6:53:25 pm PST #28853 of 30000
So come, my friends, be not afraid/We are so lightly here/It is in love that we are made; In love we disappear

Oh, Pix. That sucks, but you have already gone above and beyond here.


Consuela - Feb 23, 2024 7:48:20 pm PST #28854 of 30000
We are Buffistas. This isn't our first apocalypse. -- Pix

Oh, Pix, I'm so sorry. That is a hard thing.

Shrift and Steph and Plei: I have so much sympathy for you all. It's so hard.

I wish I could offer advice, but so many of my issues were different. We strongarmed my folks into accepting help when Dad had to get medical treatments every day and Mom couldn't be left alone. But we had to pay for it for the first year or so, until I got access to Dad's finances and realized he could cover it.

It was a constant battle anyway, because they really hated accepting help, until they moved into assisted living. Somehow that made it easier for them, but it was still hard.


Susan W. - Feb 23, 2024 8:21:51 pm PST #28855 of 30000
Good Trouble and Righteous Fights

I hate that Alex never knew his paternal grandfather (died of a sudden heart attack when Dylan was a senior in college), doesn't remember my dad at all (died of cancer when Alex was a little over a year old), only faintly remembers my mother (died of cancer when he was 5), and lost the only grandparent he really had a relationship with when he was just 18. I wish he'd known all four of them--I feel like he's missing out on a sense of rootedness and connection to the past you get from knowing your family elders.

But I'm also glad none of them had to go through dementia. My maternal grandmother did, and it was so excruciating to live through. I remember when it was just starting she'd mix me up with one of my cousins who was a few years older than me but had the same coloring, and then right before my mom and aunts finally put her in a nursing home she was calling me by my mom's name. I remember it being a huge source of tension between my mom and my two aunts who lived nearby, because the aunts were all "We CAN'T put our MOTHER in a HOME!" when they had full-time jobs and were barely involved in her care and thought that Mom should have the capacity to be essentially her full-time caregiver since she only worked part-time...which no.

All of which is to say I have so much sympathy with everyone trying to sort all this out.


NoiseDesign - Feb 24, 2024 12:20:48 am PST #28856 of 30000
Our wings are not tired

The last few times I saw my mom I’m pretty certain she didn’t know who I was. It hurt.


Calli - Feb 24, 2024 5:04:17 am PST #28857 of 30000
I must obey the inscrutable exhortations of my soul—Calvin and Hobbs

My dad’s mom had slipped into dementia by the time I was old enough to remember her. She was an intelligent, determined woman—the daughter of Finnish immigrant farmers who went to college in the 1910s, became a teacher, and demanded an equal relationship from my granddad. I have the handmade skis that she used to get to the one room school house, where she taught in the UP, on my living room wall. I wish I’d known her as she was.

The one time I ever heard Mom say something good about her father was when he voluntarily decided he was no longer fit to drive and gave up his license. She totally respected that.

Pix, I’m sorry things are fraught with your dad’s caregiver. If he can’t find work or living quarters where he is, it seems like that $10k would help him get somewhere more affordable, with more opportunities.


Laura - Feb 24, 2024 7:37:37 am PST #28858 of 30000
Our wings are not tired.

Good grief, Pix! That is terrible news about J, but seriously, he is a nurse. He can go work for an agency tomorrow. Nurses are in desperate demand. He needs to be currently employed, which he can do immediately. Yes, apartments are expensive, but I just glanced at listings in Ft. Lauderdale and there were plenty listed at under $1500 a month, which is reasonable for the city. I'm sorry he is piling the stress on, but he needs to grow up and deal with his own stuff.

Three of four grandparents were gone before I was born and the last one died when I was about 8. She lived in a nursing home. It was a big deal when my mom turned 42 because she had outlived her parents and only brother at that age. (They had diabetes, which was a death sentence at that time) Because her immediate family died so young we always thought dad would outlive her. He died at 62 and she lived to 95. I am grateful that neither of them had a serious mental decline. Mom's memory got a bit worse, hey 95! Dad had delusional episodes after his strokes but mostly told silly, not true stories. Not hateful outbursts or paranoia, which are so much harder to handle. Many others I know had a worse time of it.

I was pretty much offline yesterday being a big baby about having a cold. I am the worst at being sick. Less sniffly today so I'll skip the cold medicine which knocks me out.


Pix - Feb 24, 2024 9:00:18 am PST #28859 of 30000
We're all getting played with, babe. -Weird Barbie

there were plenty listed at under $1500 a month, which is reasonable for the city. I'm sorry he is piling the stress on, but he needs to grow up and deal with his own stuff.
Apparently most of the normal apartments require proof of employment and two months of paystubs, so it's not easy to get one without a current job. And because he's a new nurse graduate, a lot of places don't want to hire him. He's got such massive learned helplessness and no life skills because he grew up in a very abusive household and never had an adult to show him how to adult. But that's moot. He has to figure out his own stuff. He's acting like a victim, and he's an adult. The past two months sucked, and also we figure our shit out and move on. I've tried to be compassionate and empathetic and generous because I know my dad would want good things for J., but I also have a lot of debts — many from the past two months — and I want to resolve things in Florida so I can try to start to move on.

If he can’t find work or living quarters where he is, it seems like that $10k would help him get somewhere more affordable, with more opportunities.
Exactly.


lisah - Feb 24, 2024 9:01:34 am PST #28860 of 30000
Punishingly Intricate

Pix I’m so sorry you have to deal with J on top of everything else.

I’m lucky to have known (and been loved by) all 4 of my grandparents. My Mom’s dad died at 70 when I was 18 (and I still miss him all the time. My Dad’s parents died within a week of each other when they were 83 and 79 and I was 25. My Mom’s mom, who I was very close to, died at 84 when I was 35. Her death was the reason I couldn’t go to the DC F2F. My father’s maternal grandmother died when I was 2 and I met her but don’t remember her.