Much love to JZ, DavidS and family. I don't know what else to say.
'Why We Fight'
Natter 77: I miss my friends. I miss my enemies. I miss the people I talked to every day.
Off-topic discussion. Wanna talk about corsets, duct tape, butt kicking, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.
Jacqueline woke up this morning and requested poached eggs and she ate them both and that's a good start on the day.
Now I have seen pictures of your breakfast eggs and I can see where they would stimulate an appetite.
Yes, celebrate the surgery being completed with a nice yummy lunch. Go Tim's spine!
Jacqueline woke up this morning and requested poached eggs and she ate them both and that's a good start on the day.
I am happy to read this. I was talking to my mother yesterday and she said, “Oh, I know who Jacqueline is she’s always saying lovely things about my granddaughter on Facebook. She seems like such a lovely person.” So, she sends her good thoughts your way as well.
I hope Tim’s surgery went well today.
Love and ~ma to all of you.
Tim's doing well -- I didn't get a chance to talk to the surgeon yet, because he had another surgery to do, but it seems like it went well. Tim is full of drugs and snoring softly.
I didn’t get a burger, but the hospital cafeteria had salmon and broccoli, which was very tasty.
That's all good to hear, Steph. Well, the burger news could've been better, but we'll take it. And you can get one for dinner instead.
Post Deleted!
We met with Jacqueline's UCSF oncologist via Zoom.
We're not going directly into Palliative care at this point.
There's an FDA approved medicine (Lonsurf?) that we could take which might prolong her life for another couple months, but the side effects are nausea and fatigue. It works best on people with Stable Disease, though, and her cancer has continued to grow.
UCSF also has a clinical trial for metastatic colon cancer coming up, but she doesn't know the details and she's not sure we would qualify because Jacqueline's liver numbers aren't great.
The plan now is to take two weeks off from all treatment and see if her appetite and organ function improves without the chemo. Or if the ongoing GI issues are more directly related to the cancer itself.
In two weeks we'll go in and do more tests to see what her numbers look like. Then we can find out more about the Clinical Study, but I'm not counting on that to save her.
Then we can make a decision about whether we want to go on this prolonging drug.
Wishes for all of your family to have patience and courage through the roller coaster to come. Tests, decisions, good days, bad days. It's a whole lot to try and stay in the moment. Sending so much love.
ION, Jacqueline ate an English muffin tuna melt for lunch and it stayed down!
Two for two on meals today!
Matilda cheerleading all the way, "Good job, Mommy!"
Keep in mind that palliative care and hospice care are two separate things.
I hope that the next few weeks gives you all time to recover your strength and energy and balance.