I am saying a spell of thanks and prosperity for Renee and Roan and all their loving, competent peers.
Atropa, I just signed up for NOOM _and_ a course on the science of stretching. My first impulse was to make brownies to celebrate. You can see the problem with my mind.
I am 100% on the HATE IT bench. But. A hyper stressful menopause has led to an unhealthy shape change, awful joint pain, weakness, a dramatic loss of muscle, and tons of emotional eating. This has caused a big concern about my 63 year old body never coming back from this dissolution.
I'm saying all this out loud mostly to keep myself accountable. And to support you in doing whatever seems right for you.
As a pretty weak flex, I'm happy to say that I have regained my ability to get down on, and up from, the floor without the use of my hands. AND, I can do a full, relaxed squat. It's not the most graceful one I've ever done, but my feet are flat for the first time in many, many years.
I hate it all so much, but I'm determined to be the exception!
Oh, oh! I would happily participate in giving Renee and Roan and nice treat.
Count me in for nurse treats.
We had pizza delivered to my dad’s nurses when he was in. Because he was a cranky bastard and they took such good care of him.
I'm happy to coordinate money if necessary.
Please let me know about Operation Nursing Encouragement. For the first time in about twenty years, I have enough money that the pennies won't squeal when I pry them out of my purse. (This won't last, of course, with all the money I N E E D to spend on deferred maintenance and all that. But for a couple weeks I can pretend.)
Count me in for nurse treats as well.
Hello, Buffistas. To quote Crowley, I'm back.
I can see that. (I just had to provide the response.)
I'm not doing the dance.
*I* did the dance.
And the ME/CFS post-exertional malaise is no joke.
Post-exertional malaise can suck a dick.
Tim is home, yay! Although he's already making things complicated in a way only he can. It literally involves bubble wrap, no lie.
David, I have experience with both a g-tube and an NG tube with Grace and also with my friend David who had a G-tube for a few years on ensure as an adult. Oh and both of my kiddos had TPN for a few months. I can answer any questions from the caregiver side if you have them.
Thanks, kat, its great to have you for a resource. The G-Tube will probably be inserted tomorrow, and she might be released to hospice by Thursday if the hospice people would ever get in touch with me.
Jacqueline's mom and brother arrived today and I took them to see her. Her mom started sobbing as she walked down the hallway to Jacqueline's room. Her mom, Sunny, is 80 and will outlive her daughter. While I am primarily worried about Matilda, I know that Sunny's wound will be grievous and cast a shadow on the end of her own life.
I am sort of in the tooth grating stage of managing all the family members right now. Everybody's grief is palpable and also spikey and irregular. People just don't know how to process it.
On top of which there are so many incredibly consequential details I have to attend to daily. It falls to me, no matter how much everybody wants to help. They can't handle online accounts and e-sign documents.
I have a push-me-pull-you ambivalence of hanging onto every second with Jacqueline and also wanting to be past this part. It's unrelenting and exhausting and I know there's so much more to do.
Right now the looming thing is that Matilda's first day of her senior of high school is a week from tomorrow. And she might be missing the first week of school because... So I need to talk to the principal and the school counselor. One of many essential things to wrangle.
EM has been sleeping here on the couch for the last several nights, cleaning everything and making the house ready for hospice and visitors. Holding the fort down and providing meals and a steady presence for Matilda and Emmett and me.
It was a conscious effort to foster a relationship between Matilda and Emmett's mom, and it has grown to be something so nurturing for all. A bond that helps make our family.
The weekly calendar right now, though, (just in pencil) is G-Tube tomorrow, release to home on Thursday. But maybe on Friday.
Hec, I don’t have the word, but you’re in my thoughts.
