Gunn: Well, how horrible is this thing? Lorne: I haven't read the Book of Revelations lately, but if I was searching for adjectives, I'd probably start there.

'Hell Bound'


If the Apocalypse Comes, Beep Me

Birth, death, illness, new job, vacation...if it's happening to you and you want us to know about it, post it here. These threads are intended for announcements only. Want to offer sympathy or congratulations, or talk about anything? Take it to Natter. Any natter here will be deleted.

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beekaytee - Jun 08, 2024 10:07:05 am PDT #5663 of 5670
Compassionately intolerant

Greetings Buffistas! I made a video for y'all partly for my annual Best of DC campaign request, but mostly to say hey, and show my face, since I am around so little.

The link to the Video Message goes to Canva, and requires no log-in.

In it, I explain why this is the SECOND to the LAST time I will make this request and why it's important.

If you could take a quick 30 seconds to help a sporadic sister out, I would be grateful!

PS: Voting closes on Monday...because I am a procrasti-planner of the highest order!

Ballot


EpicTangent - Jun 26, 2024 5:05:45 pm PDT #5664 of 5670
Why isn't everyone pelting me with JOY, dammit? - Zenkitty

Just got off a video visit with my oncologist. With the results of my last MRI, he wants to be a little more aggressive than previously planned. So I'll be starting infusion chemo again in a couple of weeks. A different variety that will go easier on my kidneys but probably cause me to lose my hair (priorities, I know). Chemo pills and/or the drug trial are both still on the table, but more as maintenance plans once we get it more under control. As much as I hate the idea, I am starting to have more pain, so I'm definitely ready to get things going.


beekaytee - Sep 29, 2024 10:35:30 am PDT #5665 of 5670
Compassionately intolerant

Folks, I need help, to help Todd.

I've been managing her hospital stay after she let me know that she had another stroke a couple of weeks ago. She is getting good care and will, eventually, be moved to a rehab facility to regain her strength.

So far, visits or calls have not been practical. She's pretty sharp, here and there, but she has been dealing with what her psych team tells me is 'hospital induced delirium.' That's all I'll say about that, but want you to know that she's in the right hands.

She was in good spirits this morning, but is often confused and stressed.

What we need is a referral to an attorney who handles durable powers of attorney/medical directives.

In terms of support, right now, I am it. Given my own situation, it's important that we find an alternative for the legal stuff.

Thoughts would be greatly appreciated. Feel free to DM me via FB/IG, or email me at my first name @ my full name, including the -.

Thanks!


EpicTangent - Oct 08, 2024 12:13:06 pm PDT #5666 of 5670
Why isn't everyone pelting me with JOY, dammit? - Zenkitty

I just got off a video visit with my oncologist. Good news/bad news. The good news is that I'm discontinuing chemo. The bad news is because it didn't work. I've been miserable and the mass actually grew. Next step is to get me on some new drugs. There's a clinical trial right now for a very rare gene that I happen to have. There's a slight chance of surgery, though right now it would be too extensive to even consider probably. So I'm waiting to hear from the clinical trial people right now. He's hoping we can get me on some new drug in the next couple of weeks. I'm hoping that since I'm off the chemo I can start to feel like myself again and the new drug won't have too many side effects.

So, fingers crossed, say a prayer, light a candle, whatever way you send up good thoughts.


beekaytee - Oct 12, 2024 6:45:36 am PDT #5667 of 5670
Compassionately intolerant

Quick update on Toddson: Her hospital care team says she is doing well. And she let me know that she has moved to a rehab center in Bowie, MD. Ping me if you'd like to know which one.

She sounds bright in her messages, and says that both she, and her doctors, are optimistic about her recovery.

I've had to step back from my advocacy role, but I'm sure she will pop in to reconnect when she is able.


amyparker - Oct 29, 2024 9:39:08 am PDT #5668 of 5670
You've got friends to have good times with. When you need to share the trauma of a badly-written book with someone, that's when you go to family.

My father passed last night.


EpicTangent - Nov 26, 2024 6:09:36 pm PST #5669 of 5670
Why isn't everyone pelting me with JOY, dammit? - Zenkitty

Hey All, I was emailed a reminder that I haven't checked in in a while (Hi, dcp & Brenda! Thanks for checking up on me!), so here I am. Sorry for being the Lurkiest.

I believe my last update was no more chemo, starting drugs. The clinical trial my oncologist originally wanted to get me in won't accept me because my kidney numbers aren't good enough, but he had a second option ready to go. I started an oral med just over a month ago, paired with an infusion drug that I started on Nov 1. One of the known side effects of the infusion drug is an "acne-like rash" which I got. Good news - the rash tends to be an indicator that the drug is doing what it's supposed to be doing in my body (i.e., teaching the body how to fight the cancer), Bad news - I got such a VERY EXTREME rash that they've pressed pause on the drug until we can get the rash under control. I've met with the dermatologist who specializes in cancer reactions, and the rash is very much improved. But still not good enough to give me another infusion yet. My oncologist assures me that the pause won't hurt anything, the drug is still working in my system. But it's weird - the rash is really a problem, but cancer is a bigger problem, so I want to get back on track.

And IOhealthN, my hemoglobin is very low, so I'm going to get another blood transfusion on Friday (instead of the drug infusion I was originally scheduled for). I was hesitant to get another transfusion (just because everything is already SO MUCH, y'know?), but it should help with some of the fatigue I've been feeling, and apparently being as anemic as I've been is extra stress on the heart so I'm going for it in the hopes of improvement.

As I'd hoped, being off the chemo has really improved how I'm feeling. I'm still not myself, but I feel so much better than I did for a while there, I'm still calling it a win.


erikaj - Dec 11, 2024 11:15:19 am PST #5670 of 5670
Always Anti-fascist!

I just, like, wrote a thing. But I think it's pretty good, so.... [link]


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