For those of you traveling in and out of San Francisco this weekend, be apprised that Bay To Breakers is this weekend.

Here's Juliana's note:

"Just as a warning for those hanging out in SF on Sunday: it's Bay to Breakers, which is a wild 12K race that essentially cuts the city in half. Here's the route: [link]

David's old neighborhood gets hit particularly hard."

So if you are trying to get to the airport on Saturday your options for crossing the City will be limited, and you'll need to plan ahead, because there are only a few places where they allow cross traffic that intersects the route. You'll need extra time, and a discussion with your Uber driver or Cabbie.

Here is the link for Jacqueline's Memorial, 5/18/25, starting Noon PST.

It is a Livestream on YouTube:

[link]

It will reside on YouTube when the event is over so anybody can catch up to it as they need, no matter the time zone.

The event starts at Noon and runs until 4pm.

However, the first hour, as people arrive and eat and mingle, will just be a slide show of Jacqueline and the music playing at the event.

Starting at 1pm PST, people will begin sharing stories about Jacqueline and you'll see the feed.

Greetings Buffistas! I made a video for y'all partly for my annual Best of DC campaign request, but mostly to say hey, and show my face, since I am around so little.

The link to the Video Message goes to Canva, and requires no log-in.

In it, I explain why this is the SECOND to the LAST time I will make this request and why it's important.

If you could take a quick 30 seconds to help a sporadic sister out, I would be grateful!

PS: Voting closes on Monday...because I am a procrasti-planner of the highest order!

Ballot

Just got off a video visit with my oncologist. With the results of my last MRI, he wants to be a little more aggressive than previously planned. So I'll be starting infusion chemo again in a couple of weeks. A different variety that will go easier on my kidneys but probably cause me to lose my hair (priorities, I know). Chemo pills and/or the drug trial are both still on the table, but more as maintenance plans once we get it more under control. As much as I hate the idea, I am starting to have more pain, so I'm definitely ready to get things going.

Folks, I need help, to help Todd.

I've been managing her hospital stay after she let me know that she had another stroke a couple of weeks ago. She is getting good care and will, eventually, be moved to a rehab facility to regain her strength.

So far, visits or calls have not been practical. She's pretty sharp, here and there, but she has been dealing with what her psych team tells me is 'hospital induced delirium.' That's all I'll say about that, but want you to know that she's in the right hands.

She was in good spirits this morning, but is often confused and stressed.

What we need is a referral to an attorney who handles durable powers of attorney/medical directives.

In terms of support, right now, I am it. Given my own situation, it's important that we find an alternative for the legal stuff.

Thoughts would be greatly appreciated. Feel free to DM me via FB/IG, or email me at my first name @ my full name, including the -.

Thanks!

I just got off a video visit with my oncologist. Good news/bad news. The good news is that I'm discontinuing chemo. The bad news is because it didn't work. I've been miserable and the mass actually grew. Next step is to get me on some new drugs. There's a clinical trial right now for a very rare gene that I happen to have. There's a slight chance of surgery, though right now it would be too extensive to even consider probably. So I'm waiting to hear from the clinical trial people right now. He's hoping we can get me on some new drug in the next couple of weeks. I'm hoping that since I'm off the chemo I can start to feel like myself again and the new drug won't have too many side effects.

So, fingers crossed, say a prayer, light a candle, whatever way you send up good thoughts.

Quick update on Toddson: Her hospital care team says she is doing well. And she let me know that she has moved to a rehab center in Bowie, MD. Ping me if you'd like to know which one.

She sounds bright in her messages, and says that both she, and her doctors, are optimistic about her recovery.

I've had to step back from my advocacy role, but I'm sure she will pop in to reconnect when she is able.

My father passed last night.

Hey All, I was emailed a reminder that I haven't checked in in a while (Hi, dcp & Brenda! Thanks for checking up on me!), so here I am. Sorry for being the Lurkiest.

I believe my last update was no more chemo, starting drugs. The clinical trial my oncologist originally wanted to get me in won't accept me because my kidney numbers aren't good enough, but he had a second option ready to go. I started an oral med just over a month ago, paired with an infusion drug that I started on Nov 1. One of the known side effects of the infusion drug is an "acne-like rash" which I got. Good news - the rash tends to be an indicator that the drug is doing what it's supposed to be doing in my body (i.e., teaching the body how to fight the cancer), Bad news - I got such a VERY EXTREME rash that they've pressed pause on the drug until we can get the rash under control. I've met with the dermatologist who specializes in cancer reactions, and the rash is very much improved. But still not good enough to give me another infusion yet. My oncologist assures me that the pause won't hurt anything, the drug is still working in my system. But it's weird - the rash is really a problem, but cancer is a bigger problem, so I want to get back on track.

And IOhealthN, my hemoglobin is very low, so I'm going to get another blood transfusion on Friday (instead of the drug infusion I was originally scheduled for). I was hesitant to get another transfusion (just because everything is already SO MUCH, y'know?), but it should help with some of the fatigue I've been feeling, and apparently being as anemic as I've been is extra stress on the heart so I'm going for it in the hopes of improvement.

As I'd hoped, being off the chemo has really improved how I'm feeling. I'm still not myself, but I feel so much better than I did for a while there, I'm still calling it a win.

I just, like, wrote a thing. But I think it's pretty good, so.... [link]