Flames wouldn't be eternal if they actually consumed anything.

Lilah ,'Not Fade Away'


Natter 77: I miss my friends. I miss my enemies. I miss the people I talked to every day.  

Off-topic discussion. Wanna talk about corsets, duct tape, butt kicking, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


Consuela - Mar 24, 2023 11:16:58 am PDT #21317 of 30000
We are Buffistas. This isn't our first apocalypse. -- Pix

Knees are annoying! I hope they all heal up ok!

My coworkers have been teasing me about parking on the street near the office because Kias are easy to steal. I pointed out that I have been parking there once a week for about fifteen years without a problem.

... well today I realized that on Tuesday someone stole my license plate. As I park in the garage at home, it had to be on the day I drove to work. Bah.


meara - Mar 24, 2023 1:53:33 pm PDT #21318 of 30000

Doh, Suela!! But better the plate than the car I guess!!

I just had another visit for the study I’m in, and I’m going to have a big bruise from the guy digging around in my arm to draw blood (eventually went with the other side)


dcp - Mar 24, 2023 1:59:22 pm PDT #21319 of 30000
The more I learn, the more I realize how little I know.

...a big bruise from the guy digging around in my arm to draw blood

Ugh. The bruises from my blood draw two weeks ago are still somewhat visible. I hate it when they have trouble getting a good stick.


DavidS - Mar 24, 2023 2:09:28 pm PDT #21320 of 30000
"Look, son, if it's good enough for Shirley Bassey, it's good enough for you."

What does the travel routine look like? Fly down Thursday evenings, back Sunday afternoons?

That's it.

Tried to nail down and confirm we were on for next Friday but the insurance company that covers the study has to coordinate some shit with our insurance company and blah blah bureaucracy slow down and now I'm afraid to buy the tickets until they are certain.

As to your question, dcp, her pain has been well managed. So much so that we've ordered a lower dosage of fentanyl patch so that it won't make her so dopey/sleepy/drugged up.

But I'm also leery of changing a system that is working, because (as I now know) changing any narcotic prescription sets off a bunch of holds and time limit releases and override approvals etc.

So if we go to a lower dose and need to move back up, I have no confidence that we can make that adjustment in a timely fashion. And you don't want to be under medicated for pain. And you don't want to have to use the backup meds which cause horrible constipation. Which also leads to further weight loss.

There's this whole delicate juggle you have to do with the meds after every infusion balancing pain, constipation, nausea, brain fuzziness and weight loss. And after four infusions we had figured out what works with FOLFOX.

But now we have to start from scratch again with FOLFIRI (which has an unfortunate predisposition to diarrhea, which is scary to contemplate on a flight home).

The vast drawer of drugs is really all for symptom management.

It looks like the clinical trial runs through Dec' 2024. So we've got a good solid year and nine months of biweekly travel in front of us.


sj - Mar 24, 2023 2:46:50 pm PDT #21321 of 30000
"There are few hours in life more agreeable than the hour dedicated to the ceremony known as afternoon tea."

Wow, that’s a lot JZ and Hec! Continuing to send good thoughts to you.

I have Covid. Currently TCG and ltc don’t. So, I’m quarantining in the spare bedroom.


-t - Mar 24, 2023 2:55:41 pm PDT #21322 of 30000
I am a woman of various inclinations and only some of the time are they to burn everything down in frustration

Wow, that seems like a long time but maybe good to have a stable schedule over that time? Once you get it established. I hope the adjustment of symptom mgmt meds is easier than it might be

{{sj}} I"m sorry.


Jesse - Mar 24, 2023 3:35:16 pm PDT #21323 of 30000
Sometimes I trip on how happy we could be.

Oh wow, that is a long time, David.

Oh no, sj! Bummer.

Yikes, Consuela! That seems like a pain.


Sheryl - Mar 24, 2023 3:43:21 pm PDT #21324 of 30000
Fandom means never having to say "But where would I wear that?"

Timelies all!

Speedy recovery, sj.

Tomorrow morning we're going up to visit Mr. S. If the weather is decent, we'll take him to a playground near the facility for a bit.


-t - Mar 24, 2023 3:49:54 pm PDT #21325 of 30000
I am a woman of various inclinations and only some of the time are they to burn everything down in frustration

Oh, meant to say, that's pretty wild and I'm sure inconvenient, Consuela! But people stealing license plates is one of those things I have only ever read about in fiction and hadn't experienced in real life even as an anecdote so sort of an achievement unlocked kind of thing? Anyway, hope the DMV can make reporting and replacing pretty easy.


Dana - Mar 24, 2023 4:05:49 pm PDT #21326 of 30000
"I'm useless alone." // "We're all useless alone. It's a good thing you're not alone."

... well today I realized that on Tuesday someone stole my license plate.

Are you sure it wasn't one of your coworkers trying to make a point?

Good luck and hugs to people with health challenges and irritations. I'm such a hard stick that it's a miracle when someone can get me on the first try without much pain. I have one vein that's pretty much guaranteed, and it's going to be unusable at some point, because I give blood periodically and get an infusion every three months.