Up until the punching, it was a real nice party.

Kaylee ,'Shindig'


Spike's Bitches 48: I Say, We Go Out There, and Kick a Little Demon Ass.  

[NAFDA] Spike-centric discussion. Lusty, lewd (only occasionally crude), risqué (and frisqué), bawdy (Oh, lawdy!), flirty ('cuz we're purty), raunchy talk inside. Caveat lector.


Hil R. - May 08, 2014 9:31:04 am PDT #10748 of 30002
Sometimes I think I might just move up to Vermont, open a bookstore or a vegan restaurant. Adam Schlesinger, z''l

Channel that antsy, and start a new hobbie. Learn crochet. Or guitar. Or geocache.

Hmm. I sort of know how to play guitar, (meaning, I can play any song that only involves C, A, D, E, Em, Am, and G chords and basic strumming, and where the listener doesn't mind a bit of a pause at every chord change), but I haven't played in a while, because it's just been too cold all winter, and my fingers were too stiff. Definitely need to build up those calluses again.

Hil, I empathize. But try and keep your eye on your longer term goals. If this new opportunity comes through, it will make for an improvement in your life, so it will be worth the intermediary uncertainty and inconvenience.

True. And if it doesn't, I'm starting to make some friends here, and I can sign up for an art class later in the summer, and the local pool has a water slide.


Connie Neil - May 08, 2014 9:46:30 am PDT #10749 of 30002
brillig

So I need to take next Tuesday off to go with Hubby as they take out his port and put in the direct lines in his neck, which he has been dreading and having nightmares about. And my first response was "Dammit, I'm not going to have enough vacation days to take my post-hurricane-season break in October."

I hate myself a bit at the moment. I'm not worried about how this is going to upset him, I'm not thinking about them moving forward with the bone marrow pulls and his immune system disappearing, I'm just worried about my damned vacation. And having to deal with Kara, his daughter, who is willing to drive us up there and keep me company (cue standard rant about not wanting anyone nearby while I'm in a waiting room).

And we need to buy a car, and I have my own cataract surgery in two weeks, and I'm sucking at the grown-up thing at the moment.


Connie Neil - May 08, 2014 9:49:39 am PDT #10750 of 30002
brillig

My tablet's word anticipation program automatically pulls up Chemo as the first choice when I put in the letter C. And it knows the name of the cancer center in Salt Lake. Cool, but dreadful.


Kate P. - May 08, 2014 10:30:16 am PDT #10751 of 30002
That's the pain / That cuts a straight line down through the heart / We call it love

I'm having a sucking-at-being-a-grownup day too, Connie. Blah.

I think you deserve to give yourself a break if sometimes you're thinking more about how all this shit affects you than how it affects your Hubby. It doesn't mean you don't love him and worry about him; clearly you do. It just means that this is all a huge strain on you too.


Dana - May 08, 2014 10:31:02 am PDT #10752 of 30002
I'm terrifically busy with my ennui.

Sometimes all you can focus on is a small thing.


Connie Neil - May 08, 2014 11:47:22 am PDT #10753 of 30002
brillig

And the schedule has just been thrown out the window. Starting next week it's daily trips to Salt Lake for three-hour bone marrow harvests for two weeks. And then, 1st week of June, he goes into isolation for a month.


Connie Neil - May 08, 2014 11:53:45 am PDT #10754 of 30002
brillig

And if the worst happens, I won't have to plan a funeral. He's going for research, he's signed documents for that. That's actually a relief to me.


brenda m - May 08, 2014 12:01:53 pm PDT #10755 of 30002
If you're going through hell/keep on going/don't slow down/keep your fear from showing/you might be gone/'fore the devil even knows you're there

That's a tough schedule, Connie. Best to you both to weather it.


Typo Boy - May 08, 2014 1:32:26 pm PDT #10756 of 30002
Calli: My people have a saying. A man who trusts can never be betrayed, only mistaken.Avon: Life expectancy among your people must be extremely short.

That is tough Connie. I hope the worst does not happen. I will note that there is a lot of research that shows care givers for people with serious illness often become seriously ill themselves from stress, fatigue and self-neglect. So a reaction where you worry about yourself a bit is healthy rather than something to beat yourself up over.


Connie Neil - May 08, 2014 1:41:54 pm PDT #10757 of 30002
brillig

I'm going to postpone my cataract surgery to September. I've got a few months left to me, and by then he'll be done with this. Gods, to be done with it.

If the schedule holds, I'll be on vacation for the second week of his isolation. I asked if he'd mind if I didn't spend vacation with him, and he said, "I'll be in a bubble, all we'd be able to do is stare at each other." But he will get his laptop, so he can liveblog his stay on Facebook. If he could spell, he'd be a terror on the Net.

His hats continue to be the hit of the various cancer departments. Today he wore his Cat in the Hat hat, and he had various paperwork stashed in it. A nurse asked for his drug history, and he pulled it out of the hat. "Oh! You pulled it out of your hat! Wonderful!" He heard staff talking about it throughout the department, and waiting patients were giggling.

Kara is not going to be able to help with transportation through the next few weeks, because she's going to Bali for a month. I have no idea how she's managing this, but I suspect it's a diving vacation. Her in-laws have money. She didn't know just how bad this was. If the cancer comes back, there are no treatments. They're doing all-or-nothing on him. Hell of a year.