I have some indeterminate number of more days of school. I think perhaps 11 or less? I dunno.
Grace's OT is leaving. We may not see her again because the last week I promised to take Grace to the Lego Store for the mini model build. Ooops. I think I'll work on trying to arrange it to make it work.
The PT who did an eval on Grace talked to me and pulled the You're A Bad Mom Card because she hasn't been in PT for two years. And because maybe she has scoliosis, even though I'm 100% certain her femur is shorter. And she has lots of quirks and weakness. HELLO. She has cerebral palsy, of course she does. Frankly, there are only so many days and what I really care about (becoming no longer trach dependent, speaking and eating) are higher on my concerns and needs. Same reason she hasn't had eye surgery.
Sigh.
I sometimes wish that things were different.
The PT is full of bullshit, but you know that.
Grace us amazing.
Grace is amazing. But scoliosis would suck.
You're a great mom, Kat, you're just overwhelmed.
Today, I left work at 1 to take Grace to the orthotist to have her fitted for a new brace, which is like her old brace two iterations but hinged and larger. Then I knew she had OT at 5:00. So I thought, oh! I have time to waste. So we went to the bookstore and I bought a Jane Austen teacher. I forgot that during that time period, I was supposed to take her to have x-rays on her back and hips as requested by the PT.
The PT also told me Grace needs to see an orthopedist. I didn't think of it at the time, but she does. In fact the only way we are able to get Grace into PT is by having the orthopedist refer her. Granted, he's not a great orthopedist but he's what we got.
Scoliosis would suck. My niece (who I cannot believe is almost 13) just had surgery last week to correct a 65 degree curve. (When it's that bad, a brace won't do squat.)
Grace is awesome, though, in all senses of the word.
Kat, it's like that PT noticed you were juggling chainsaws, and thought it would be useful to set them on fire.
Lobstered out?
I would like to attempt to achieve this.
For what anecdote is worth, my sister's CP affects her right side and her right leg is shorter and her right foot is a size smaller. My mother's scoliosis shows as a visible S-curve of her spine. (I got the bad knees.)
Lobstered out?
I would like to attempt to achieve this.
This happened to me on the cruise with my mom. I kept ordering and ordering lobster. Then one night, I was looking at the menu and said "I think I'll have the chicken, I'm tired of lobster" My mom said "Yes, it was only okay last night". We looked at each other and burst out laughing.
