I don't really have a security blanket... unless you count Mr. Pointy.

Buffy ,'Lessons'


Natter 71: Someone is wrong on the Internet  

Off-topic discussion. Wanna talk about corsets, duct tape, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


Consuela - May 15, 2013 7:30:31 pm PDT #22553 of 30001
We are Buffistas. This isn't our first apocalypse. -- Pix

Looks like we'll probably be moving Mom to a SNF in the not-too-distant future. Caring for her is killing Dad, and the % of time she doesn't recognize him is ratcheting upwards.

She's also awful. But that's not new. It's just more constant.

Thank fuck, my brother the doctor is coming out tomorrow to consult. And we're all agreed that brain surgery is off the table.

I have to go find that article about how doctors die, again: they don't keep running around for more treatment. And they die peacefully and not drawn out, after months or years of pain.


Burrell - May 15, 2013 7:30:57 pm PDT #22554 of 30001
Why did Darth Vader cross the road? To get to the Dark Side!

hormones and obligation.

Sounds like parenthood to me.


Burrell - May 15, 2013 7:38:06 pm PDT #22555 of 30001
Why did Darth Vader cross the road? To get to the Dark Side!

Looks like we'll probably be moving Mom to a SNF in the not-too-distant future.

I think that would be a very good thing. That's where we moved my mom when the time came, not because she was mobile (she wasn't) but she needed the high level of nursing care.

I have to go find that article about how doctors die, again: they don't keep running around for more treatment. And they die peacefully and not drawn out, after months or years of pain.

I was trying to figure out a way to gently suggest that perhaps she didn't need to speed off to the ER quite so often, but I didn't want to sound presumptuous. But it's just going to the ER is stressful for her as well as you. But has your family discussed things like hospice care and the like? I would imagine it's hard for your father to face.

What happened BTW? Did she have a stroke, or are they still unsure?

I feel so much for you, Consuela, having gone through our own version of it here. You have my ear whenever you need it.


Consuela - May 15, 2013 7:52:01 pm PDT #22556 of 30001
We are Buffistas. This isn't our first apocalypse. -- Pix

What happened BTW? Did she have a stroke, or are they still unsure?

Looks like normal pressure hydrocephalus, which is water on the brain: it fills up in little gaps & causes problems. The treatment is a shunt directing the fluid into the abdomen, where it's reabsorbed. Mybrotherthedoctor says it wouldn't do much good, and it's still BRAIN SURGERY.

I think the NPH is in addition to the vascular dementia, but without an autopsy nobody knows for sure.

They sent her off to the ER the first two times because she fell off the wheelchair and hit her head. Today it was because the GP arrived and thought she'd had a stroke, she was slurring so badly. And she is, far more than she was on Monday, but according to the catscan there was no stroke.

So, yeah. We need to talk long-term (or even short-term) prognosis, and maybe hospice, and definitely respite care for Dad. I really don't like moving her again, but our options are limited--I don't think the ALF is going to be on board with keeping her where she is. She needs more care than my dad & the available staff can provide, and it's going to kill him to try.


Burrell - May 15, 2013 8:00:59 pm PDT #22557 of 30001
Why did Darth Vader cross the road? To get to the Dark Side!

Oh crud, Consuela, that's so hard. I'm glad your brother is nixing the surgery so that it's not an issue. It does sound like it's time for a family talk around a lot of hard issues. I'll be holding you in my thoughts and hoping that everyone can quickly come to agree on what's best for her, especially your dad. Much love to you.


Consuela - May 15, 2013 8:15:27 pm PDT #22558 of 30001
We are Buffistas. This isn't our first apocalypse. -- Pix

Thanks so much, Burrell.

I'm just so overwhelmed. Between all this and the job situation, I just want to go hide somewhere.

And now I have to go to bed, where I will probably lie awake and worry. Bah.


le nubian - May 15, 2013 8:17:40 pm PDT #22559 of 30001
"And to be clear, I am the hell. And the high water."

Consuela,

while I am not living through your circumstance, I was at a near panic from May through July because of moving, new job, work and I was seriously at/over my limit.

The only thing I knew was to take things one step at a time. It is a lot and it will feel like you can't handle it all but you can. Just one step in front of the other.


WindSparrow - May 15, 2013 9:50:55 pm PDT #22560 of 30001
Love is stronger than death and harder than sorrow. Those who practice it are fierce like the light of stars traveling eons to pierce the night.

What a tough place to be in, Consuela. All the best ~ma for finding the solutions that will work for your family.


Cass - May 16, 2013 12:54:54 am PDT #22561 of 30001
Bob's learned to live with tragedy, but he knows that this tragedy is one that won't ever leave him or get better.

I have to go find that article about how doctors die, again: they don't keep running around for more treatment. And they die peacefully and not drawn out, after months or years of pain.

I really think that it can be a much better way to live. Maybe a shorter time but a better overall quality of life. Not that medical treatment can't lead to wonderful things but, at the end of life, I think we go to far. Just grasping for things we can't ever hold and keep.

This is a really hard time, Consuela. If you ever need an ear or experience, I am around. Nothing makes it stop being hard but some things make it a little easier.

I am sorry about Uncle Bud, lisah.

Anne, I am sorry that Jeeves is declining.


Theodosia - May 16, 2013 1:48:35 am PDT #22562 of 30001
'we all walk this earth feeling we are frauds. The trick is to be grateful and hope the caper doesn't end any time soon"

I'm so sorry, Consuela. I'm specially glad your brother-the-doctor is going to be on hand to help navigate the medical conundrums and help pick among the lesser of evils.

Woke up before dawn to the sound of cats yowling. Amazingly it wasn't any of our household furballs, but strangers outside. So much for sleeping in....