My doctor has a number of things on his to do list today--not least of all to make nice with the ER, because apparently he pissed them off yesterday to the point where the denying doctor (Dr. Morocco, if you're scoring at home) hung up on him. So he wants to make sure I don't get treated badly because of that.
He's also trying to get face time with the woman that runs the place (with whom I used to get along, when I worked for the damned hospital) to discuss this.
He read me some of the notes from the doctor that dealt with me when I was admitted last week. This is the doctor who said tales of my bad reaction were "dubious". Said cool doc actually wrote a bit about this claim--he said he couldn't track down any record of it, just a handwritten, unsigned, undated scrap of paper in my file saying I'd had a bad reaction at some point previous. And apparently it's been crossed out with an annotation to disregard by the mystery social worker I've never met.
So this is the bullshit that the doctors who don't want to treat me have been using as a crutch. THERE IS NO MEDICAL RECORD OF ME HAVING HAD A NEGATIVE REACTION. And, oddly, there is more than one record of me having had absolutely healthy reactions to said requested regimen--and these are both signed and dated.
So a doctor can say to me "We don't think that you need IV painkillers" and when I ask them what I do need, they suggest oral painkillers. When I tell them I've run through all the FDA approved oral narcotics, and ask what else they'd suggest, the reply is "I don't know--I'm not a pain doctor, and I don't know your full records." At which point I say "Hey! I happen to have some recommendations from a doctor who does specialise in pain, and has been paying attention to my case for a few years now--do you think he might have an expert opinion?" "Look, we're just not going to give you these medications."
Why do they prevaricate? Why do they lie outright?
It's like they're playing chicken with my specialists, and I'm standing in the middle of the road.
And no, I can't get infusions from oncology, because they won't administer narcotics there, and the normal meds they'd infuse for migraines don't work for me.
And no, my neuro didn't have anything to give me that worked, but he did administer most to his samples to me.