It's really scary that it seems nearly impossible to do on your own.

It's especially hard when you're the patient and it's a crisis situation, not like me wondering why I was so low-energy and lethargic. I just happened to learn to question everything doctors told me through my mom, who had to learn to do that the hard way because of the lupus and its complications.

Anyway, Tep, I hope your dad's okay.

ita !, that's about the same thing that happened with my mom. They went for a hysterectomy before they even thought of a colonoscopy! WTF. Especially since her father had colon cancer in his 50s, successfully operated on, but still, family history. Yeesh.

Car is not done, turns out the front brake calipers are leaking and need replacing ($700) and the water pump is leaking ($400). I get to drive a loaner for a couple of days since the brakes make the car unsafe to drive. And, damn, my credit card is going to take quite a hit. I hope I get a decent amount back on my taxes this year.

Wishing you calmness and advocacy~ma, Tep.

sumi, I don't know what all that means, but I'm glad you're making progress towards a diagnosis and treatment.

Went to Doggies and Donuts, went to the park, played in a bounce house, and I need to go to the farmer's market but I'm so tired. Didn't sleep well last night, want a nap. Somebody motivate me!

Oh, and filed under "always think you might be wrong", StW did crash out last night - there seems to be some text delay going on in the city, not sure why. Lots of UK Wildcat fans use Verizon, maybe?

Solar flares. Seriously.

Good to hear you have responsive capable care, sumi. I hope they are able to resolve the issues quickly.

{{Teppy}} I can imagine how frustrated you must be.

Each time I have been in the advocate role with loved ones' medical care I can't help but worry for all those that don't have someone to advocate for them. It requires so much time and effort to fight the providers, and the insurance companies, and of course the patient is too sick to be able to deal with it all. Our system is so uneven and difficult to maneuver through.

Today was fun here. We had a parade. The mayor, city council person, HS marching band, step-team, basketball team, cheerleaders, football team, principal, teacher, and parents. We looped about a mile in the neighborhood around school then had a celebration at school.

One the speakers was 85 year old woman who grew up here and went to the school back when it was called the Pompano Negro Grammar School. The school was only open 6 months a year at that time so that the children could tend crops. She went on to get her doctorate and was on the school board for 40 years. Mind blowing the changes she has witnessed in her life.

The solar flares have been seriously messing with me since basically everything I do is online through cel technology. I have decided from now on I'm going to blame everything on solar flares.

Sun! Don't take our Liese away from us! We need her!

Suddenly I have a vision of Apollo bukkake. Sorry about that, guys.

The doctor who failed for a year to diagnose my mother's cancer is presenting at a cancer convention thingamajiggy on diagnosing colon cancer. The plan is to get my mother seated in the front row, and to get up and walk out as soon as he starts to talk.

Oh my fucking god. I am forever grateful to Bob's doctor for sending him to get scoped RiGHT AWAY when he reported his symptoms even though he had no family history of colon cancer and was way too young to generally get the disease. We were really, really lucky.

Each time I have been in the advocate role with loved ones' medical care I can't help but worry for all those that don't have someone to advocate for them.

I worry about this a lot too. Because no matter how well meaning and how competent the med staff are there is going to be something that slips through the cracks. You have to be so vigilant and not afraid to speak up. Like something as stupid as when, the day after Bob's big surgery, the kitchen sent up a regular lunch for him although he was meant to be on clear liquids still. I mean, we knew right away it was wrong and fixed it but how many people wouldn't even be able to do that?

My mother was so obviously sick. She'd lost enough weight to be lighter than me and my sister, which is just NOT ON. She'd been scanned from head to toe, and he'd looked at images of her colon, but just not interpreted the mass. In fact, he didn't until a new doctor pointed it out. At which point she was pretty much being rushed into surgery. Oh, he was apologetic, but what the fuck?

Aw. Moebius has died.