That is infuriating, Kat!

We had issues with Bob getting sent food he wasn't supposed to eat when he was at Hopkins after his surgery. Also getting solid foods sent up before he was allowed to eat them! Not as bad as your situation but, still, it was a total communication fail!

Egad, Suzi. Good luck.

The dietician just called. She's all, "But the computer says that I can't and I'll get in trouble for it."

"Um. If you don't, I'll walk down to the cafeteria, buy applesauce and yogurt myself along with juice and just feed her. I am in charge of her diet. She does NOT get milk, formula or orange juice. To send that up would make her reflux."

Last night I ordered fish, peas, carrots, applesauce, yogurt and cranberry juice and no one blinked. For lunch she had turkey and gravy, carrots, green beans, pureed peaches, yogurt, juice and again no issues.

what changed in the computer since then?

I better head down to the cafeteria now.

I understand the worry, just get sand trucks out everywhere though. grrr.

Fear the ire of a chronically sick kid's mother. Don't fuck with that shit.

I understand the worry, just get sand trucks out everywhere though. grrr.

I'm sure they don't have enough -- and didn't I see somewhere that the teams have their own sand trucks now?

oh probably. It feels ridiculous to be stuck at home with what I see out the window.

The dietician just called. She's all, "But the computer says that I can't and I'll get in trouble for it."

Huh. I would have said something nasty like "clearly the hospital is wasting their money paying a dietician. A high school student could follow the directions on the computer."

The snows have just begun here. (Except for the 10 cms we got overnight.) One uni has closed and the military have been sent home. Bets are on us being the last to be sent home...in the middle of the storm.

I mean, I get where the dietician is coming from -- she has the orders as stated from the doc in the computer. Accordingly she has a limited number of foods that she can send without contravening the doctor's orders. If I were a litigious type and she sent the wrong thing and it caused an issue with the g-tube she COULD be in serious trouble.

Many medical professionals are wigged by what we do -- our willingness to push food through a tube and our willingness to abandon formula. They see it as dangerous though of course real food is what the body does best with. For an oral eating kid Grace's age, one would never just give her cans of formula!

But it hasn't been a problem until now. Next time I'll just blend and bring food and then it will show up as she is not eating at all. So fine by me. until the doc calls CPS.

I also just but an Odwalla Protein shake. It doesn't have enough calories nor enough protein, but it should be okay for a meal or two.