having gone through a fms dx at age 19 i'm very familiar with the spoons analogy and find it apt. It's not about unlimited spoons = unlimited energy at all. I've been in a "remission" state for over 3 years now and i totally feel blessed to not have to count. I get up in the morning knowing I can pretty much do whatever i want to do during the day. Sure, i'm not out running marathons, and like everyone i get tired most days because there's never enough time in to do all the things i *want* to do...but that is not at all the same thing as ending up in the hospital because i tried to stand through an hour long painting class, ya know?
Running out of spoons is not running out of energy, it's running out of *ability*. It's collapse. That's what people who have never had a chronic issue rarely understand. *shrug* it's a tough thing to explain.
Now I neeed to make brownies tonight. Pretty sure i can still fit in a brisk walk through the local park and cooking dinner too, if time permits :)
fibromyalgia diagnosis. sorry, too used to shorthand :)
heh, and i guess it makes a difference that i was in college at the time. I think teenagers and early 20 somethings have far more a sense of boundless-energy-until-you-pass-out-ness and i was super jealous of missing out on that.
It's really difficult to think when your brain is slowly rather rapidly roasting inside your skull.
We've got AC up here in Pasadena if you want to come by and hang out Sean.
Hey JZ did you send me your mailing addy?
It's really difficult to think when your brain is slowly rather rapidly roasting inside your skull
Advantage of workshop in basement. It's cool here. Of course, my phone gets no reception. But hey, whatev! Beats the 100º weather outside!
Ho. Lee. Shit. I'm working in a classroom!! An honest to goodness classroom! With kids!
Aims, that is AWESOME! We knew you had it in ya! Knock em dead!
a really good explanation of what it is like to have a chronic conditions - It makes me feel lucky, because I have a lot more spoons most days
I liked this. Although my condition is far from Lupus (thankfully), and many of the day to day stuff doesn't eat a spoon or two. But work sure does. And there is a huge difference between being tired, and just running out of steam. Food shop or cook? Cook or clean? By the end of the day, those are my choices. And then there is the few days to recharge your supply of spoons. And the strange one, where sitting too long can cost spoons, which boggles even me! While it's not an idea model, it is helpful to have something physical in your hand to illustrate with.
OK, well, seems my motivation has run off with Meara's. Hopefully they are having more fun than I am. Seems work is giving out one last (hopefully last) paper version of the calendar while the Stage Management Grad Students get acostumed to the google version. So I have to sift through a million events to see what has been added, so I can update my calendar. :: sigh ::
Gronk. That's about all I've got right now.
How long until Thanksgiving?
I gave a quiz today. Same quiz to all four classes. I thought I'd been teaching the same thing in all four classes. One of the problems on the quiz, though -- in three of the classes, most of the students got it right. The ones who got it wrong were mostly the ones who've been struggling with the material for a while, and they all got it wrong in fairly predictable ways. In the fourth class, though, not only did at least half the class get it wrong, they all got it wrong differently, many of them in ways that I cannot follow at all. I'm puzzled.
Odd, Hil, def sounds like that group didn't get the memo at all. Maybe there was a pretty bird outside the window that day?
Aims, I'm so pleased for you!!
I am subbing!! Not as a teacher...
SUPER PORNY PANTS IS PROUD OF YOU!!!!!!
but as an instructional parapro/aide!!
SUPER PORNY PANTS IS EVEN PROUDER OF YOU!!!!!
