Yeah... That went well.

Mal ,'Trash'


Natter 66: Get Your Kicks.  

Off-topic discussion. Wanna talk about corsets, pandas, duct tape, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


Jesse - May 29, 2010 12:21:30 pm PDT #2502 of 30001
Sometimes I trip on how happy we could be.

I can't imagine having to figure all this out, I'll tell you that. You've got all my vibes for patience and non-allergic reactions.

Seriously.


Kat - May 29, 2010 12:28:47 pm PDT #2503 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

So, to figure it out, you go to the mypyramid.gov and plug in info on what a preschooler needs. I think I need to do this on a non mac because everytime I try it fucks with me.

Then I just have to figure out what I can add and subtract etc to make it work for Grace. For another kid about Grace's age with a g-tube this is what her blends look like:

12 oz rice milk
8 oz apple juice
1/2 cup of veggies (e.g. broccoli) or 1 cup greens (e.g. kale)
1/2 cup grain (such as brown rice or quinoa)
1/4 cup wheat germ
1/4 cup beans, chicken or fish
1 dried prune
2 TBSP blackstrap molasses
1 TBSP olive oil
1 TBSP maple syrup
1 tsp iodized salt

The g-tube isn't permanent, necessarily. I mean, whenever Grace is willing to eat enough calories it can come out. But for her entire life, she has never taken anything by mouth. She has a huge oral aversion and because she is tube fed on a 24 schedule, she never feels hunger so why eat? When we are ready to do a severe wean, we'll need to find a place like Toft House in Everett to take her on and how we will pay for that remains a mystery.

Many g-tube kids take ages to come of the tube. By ages, I mean, like multiple years. I have visions of Grace turning 21 and bellying up to the bar to pour shots in directly to her g-tube.


Amy - May 29, 2010 12:31:08 pm PDT #2504 of 30001
Because books.

Molasses! That's unexpected.

I have visions of Grace turning 21 and bellying up to the bar to pour shots in directly to her g-tube.

Well ...


Jesse - May 29, 2010 12:31:43 pm PDT #2505 of 30001
Sometimes I trip on how happy we could be.

Oh lord, there was a woman on Intervention like that once for real.


Kat - May 29, 2010 12:35:49 pm PDT #2506 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

Molasses provides a lot of calories for little volume. I could do corn syrup too, I bet. Or, if she's not lactose intolerant, than heavy cream.


Jesse - May 29, 2010 12:54:53 pm PDT #2507 of 30001
Sometimes I trip on how happy we could be.

And doesn't molasses have some sneaky nutrients?


Jesse - May 29, 2010 12:56:14 pm PDT #2508 of 30001
Sometimes I trip on how happy we could be.

Yes! Especially iron. [link]


Kat - May 29, 2010 1:01:55 pm PDT #2509 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

There we go. YAY Molasses! Not only is it good for you but rum too? Or is there no molasses rum connection?


msbelle - May 29, 2010 1:03:56 pm PDT #2510 of 30001
I remember the crazy days. 500 posts an hour. Nubmer! Natgbsb

wow, yuck day all around - sorry for everyone.

mac is just NOT HAVING it. He is holed up in his room playing the DS. He knows this means no DS tomorrow, but as I am not willing to physically fight him, he gets to play now. At some point he will fall asleep and I need to have emotionally psyched myself up by then to be the parent who sneaks in and takes toys, again.

I am kinda in this no emotion space because I really do not have the emotionally whatever to have or deal with a blow-up. I just talked with my parents and I think they hear depression in my voice. I am sure there is some of that, but I think this is more survival mode for me. I am convinced the whole month will be like this, so I need to reserve every type of strength.

anyhoo - since he is hiding in his room, I had pie for my snack. Now I should think about dinner. Maybe biscuits.


Jesse - May 29, 2010 1:04:06 pm PDT #2511 of 30001
Sometimes I trip on how happy we could be.

I'm sure rum is good for you.

Maybe not so much for Grace.