Hil, that sounds like your doctor was using outdated diagnostic criteria.
He's discussed it with some other doctors, and he said the conclusion was that I don't quite fit the diagnostic criteria for anything. And a lot of doctors are now saying that HMS is a type of EDS and not a separate thing. There really isn't a good set of diagnostic criteria for the types that don't involve specific genes, and for someone like me with a weird presentation, he says the consensus is that it's something like EDS, but no one's quite sure if EDS is the right label to put on it.
Article from a doctor at Johns Hopkins who's done a lot of the genetic research: [link]
There is disagreement as to whether the "benign familial articular hypermobility syndrome" is identical to EDS, hypermobility type or represents a unique condition [Grahame 1999]. The distinction is subtle and relates to degree of joint complications and presence or absence of skin manifestations. However, first-degree relatives of probands with hypermobility type EDS often have relatively asymptomatic joint laxity and mild or absent skin manifestations. Therefore, the benign hypermobility syndrome is included as EDS, hypermobility type for this review.
Zenkitty just shared this in Natter, and it provided me a much needed laugh. I just know the Bitches will also appreciate watching someone get "shagged by a rare parrot".
heh, tommy.
It was funny and cute.
Oh, that is SOOOOO like Olivia. She just NEVER EVER stops talking. I just took her to the grocery and I feel completely spent. I want a sensory deprivation tank just for the quiet.
Is it wrong that I kind of have a crush on one of the Wiggles?
Is it wrong that I kind of have a crush on one of the Wiggles?
I think we need to know which one before we can make a judgment call.
The one in the yellow shirt.
I mean, how can you not? [link]
Well, as long as it's not the Red Wiggle. Of course, this leaves open the question of whether we're talking about Original Yellow Wiggle or New and Improved Yellow Wiggle.