But if you do that, you're a bum. Asshole.
'Our Mrs. Reynolds'
Spike's Bitches 48: I Say, We Go Out There, and Kick a Little Demon Ass.
[NAFDA] Spike-centric discussion. Lusty, lewd (only occasionally crude), risqué (and frisqué), bawdy (Oh, lawdy!), flirty ('cuz we're purty), raunchy talk inside. Caveat lector.
I would say wedge, but maybe one showing more foot than the pictured one? So as to not stumpify.
(sorry ahead of time for the asscaps)
OMG!OMG!OMG!!!!!!!
OK. Head about to explode (from good)! Just got off the phone with clinical trial folks. It's been weeks of phone tag. The info on the website that I found wasn't complete. THERE IS A DRUG! The study is a double blind one. They need 50 folks for the study. They currently have 13. Yes, that is how rare this damn disease is. They are hoping to start in the fall, if they get the 50 folks. Will involve flying to Washington DC and testing at NIH. OMG!!! I need to get a genetic test (I've only got the muscle biopsy from when I was an infant). So. Now we need 36 more people with the RYR1 gene mutation.
OK. Gotta try and work with this info buzzing in my head. My hands are shaking! Crazy!!
That's amazing news omnis!
Omnis, that is wonderful news! I hope the clinical trial is a great success.
I had my last iron infusion today. Maybe now I can stop having bruised arms for a little while.
Awesomeness!
My hands are shaking! Crazy!!
They will be happy to have you, you're such a high achiever that you're presenting side effects even before you started taking the drugs.
Ha! You crack me up BT!!
Hooray, Omnis!
When you report it, make sure you call them "jazz hands". It's important to get the medical terminology right.
omnis, that's wonderful!