smonster, I posted a picture on the Buffistas FB page and the full size picture shows that Ginger's huge grin is a result of watching your beautiful dance at the Atlanta F2F. Of course the memory also brought a big smile to mine.

It feels like the past few months Ginger has been more open in her discussions of her struggles with her health and the horrors of our medical system. To me it seems like she was trying to prepare us, or maybe herself and us. Just a feeling I had a couple weeks ago.

In some ways, we haven't talked a lot recently, but we shared a hatred for being treated like a patient and for sentimental bull of all descriptions. I will think of her always when I read a science article, or when the anti-southern prejudice I grew up with flares up.She was funny and sharp, and when you "fuck" cancer next, spare a few for how this society treats people who are trying to get treated.(In some ways, that may almost be the bigger travesty.)

Off work, at home. Could hardly focus there. Lots of things to do here, though. Had to explain some people who wanted attention/empathy/my ear and shoulder what's going on. That sucked.

To me it seems like she was trying to prepare us, or maybe herself and us. Just a feeling I had a couple weeks ago.

Yes, me too

and when you "fuck" cancer next, spare a few for how this society treats people who are trying to get treated.(In some ways, that may almost be the bigger travesty.)

Oh hells yes, it really is. Such a fucked up system.

Much as with ita, half her energy has been spent fighting the disease and half fighting inertia and bureaucracy and absolutely stupid fuck-ups of what should have been routine standing orders for this test or that infusion or the other check-up. It's like Brazil with all of the nightmares and none of the visual whimsey.

Doctors order tests but no one confirms that the testing facility is aware of the order. HiPAA laws are important, but so many times we were unable to get clear information on what is going on. They had no problem handing me refilled prescriptions, but they wouldn't tell me what prescriptions Hubby had.

So very very hard.

Just caught up with Beep Me. I am so very sad and so very angry at the same time. None of this should be happening and all I want to do is rage and cry at everything. Fuck cancer.

I can't decide if I should post this today or not with everything with Ginger going on, but since I posted about my trip to urgent care on Friday, I guess I should post the follow up. I had a high fever all weekend and felt miserable, and then today I noticed my arm was scary red and not just around the immediate injection site. So, it was trip number 2 to urgent care. The doctor there wasn't positive if it was an infection or an allergic reaction. So, I'm on both an antihistamine and an antibiotic and am supposed to watch to make sure the redness doesn't continue to grow.

Yes, please post, sj, and everyone. This is life, and we do life together. Ginger's story is part of that, but so is everyone else's, no matter how much more trivial we feel it is than life & death, it isn't. Life is as important as death, and our community here is built by us sharing both.

Anyway, yikes, that sounds scary and I'm glad you went back to the doctor. Hope it heals quickly.

Thanks, Liese. It hurts terribly and is making childcare interesting. Thank goodness for Victor and thessaly. They were supposed to be coming over to hang out and see the baby, but ended up taking me to urgent care, taking me to the pharmacy, and entertaining and active ltc the whole time. Then coming back to the house with me and getting us Thai takeout while watching Supergirl episodes they had already seen but I hadn't watched yet.