ita's alleged doctors sound like they think her specialist is being blackmailed by ita into giving her drugs so they're seeing themselves in the roles of heroically saving her specialist from his folly.

I never say this, but they are so asking to be sued. If your doctor has privileges at that hospital and has filed orders with the ER (for a treatment that can't currently be done anywhere else), a doctor refusing to treat you is obscene.

I'm glad Santa Monica came through.

"Persistent and intractable" "chronically cyclic" "ample evidence"

Those are the sorts of phrases my neuro uses in framing his case.

For naught!

I'm so nervous to check my work email and see if the project is complete. Punk ita ! In the bad way.

ita, I"m glad that SaMo is working for you. I think they are a nicer setup than RR, personally. Even if the parking makes the Baby Jesus cry.

We did not take Grace to the hospital. I'm pretty sure she has either RSV or flu, both of which aren't treatable by anything we can't do at home. Can I keep her monitored at home? YES. Can I pump her full of fluids even if she won't drink? YES. Can she be on oxygen? YES. So in lieu of taking her in, we are keeping her here. I don't think her antibios are helping, but she will remain on them for the full course, cause that's how we do it here.

Her pulse is below a 100 which means she currently doesn't have a fever. With oxygen on, she's satting at 99, which is good. Of oxygen she is ranging between 87-90 sats. She was much more chipper and had more energy today, but she was on oxygen for almost all of it.

I think she'll stay home again tomorrow. She was supposed to have surgery on Tuesday, but we rescheduled. Nothing that can't wait.

Though we still have Santa Monica in our pocket and if things seem out of control, we'll take her to the ER tonight.

Well, I'm glad you're getting treated, but I'm sorry it sucks so bad.

I have a super minor headache, and I'm very tired, so I think I'm going to call it an early night and hit the bath and bed, since I should probably leave early tomorrow.

Someone remind me I can look at the traffic cameras to check the road conditions in the morning.

Oh Jesus h christ, ita !

I wish there was something I or we collectively could do to make this better for you!

It's crazy that you have to have all that gear, Kat, but I'm glad you do and can treat Grace at home. Hope she recovers fully soon.

It is crazy, Liese. I could run a little health care step down clinic out of house. I also have a suction machine for when we need it and a nebulizer and an atomizer. Things that are running as I type: oxygen machine, pulse oximeter, atomizer and a vaporizer with Vicks in it.

Poor Grace, and her mom. But it's good that she at least felt peppier today.

Poor Grace indeed, but NSM poor us. It's weird how normal this all feels because it's so not normal. But it's my normal. I haven't been feeling great either, so I've enjoyed the stay-in nature of convalescence. It was a rainy day and it was nice to stay in and eat chicken and corn chowder with green chiles, or to eat roast. We also watched Ratatouille and napped on the floor.

I was also watching old videos of Noah. [link] is my favorite. It's odd how we can celebrate his early life, but with Grace it's so much harder. We celebrate a lot of her life NOW, which I love and appreciate. But man, it's hard to think about her first years.