Tell me about it. When I was poster child, I did a lot of telethons. Nothing but that followed by tear jerking stories to help the kids. Hmm. That might be why I haven't watched the Labor Day Telethon in awhile.
I haven't gone to a SB gathering in a very long time. Too much being told I wasn't disabled enough for my taste. As soon as I was old enough to decide for myself whether or not I wanted to attend those things, I was out of there.
I have read
Bright Sided.
I agreed with most of it, although she has a wacky view of breast cancer treatment that could be harmful.
wtf, sj? People are so wrong sometimes.
The only relative I have who sends spammy political emails always sends the RW ones. Like some joke where the punch line is that the US has gone to hell since Obama's been in office, or lame riffs about how it used to be back in the good ol' days. I usually delete his emails without opening them.
I also meant to say the other day that you should please post whenever you need to. I think about you often, but I don't want to bug you too much about how you are doing unless you don't want to talk about it. If there is anything you need, you should speak up.
Ginger, I say this also.
I've been re-posting a lot of pro-Obama stuff on Facebook lately, mainly to annoy the shit out of someone. But the fun of it has worn off, so I'm done.
Too much being told I wasn't disabled enough for my taste.
Oh yes! This. Only for me, it was "You are so lucky you have one of the mild forms of Muscular Dystrophy". No. If I was lucky, I wouldn't have MD at all! It took a while for me to stop agreeing with people who told me that.
"You are so lucky you have one of the mild forms of Muscular Dystrophy".
Same difference really, and I heard that too only with Spina Bifida. A lot. Mostly from parents whose children had a more severe form of the disability. As an adult, I can sort of see where they were coming from, but it was difficult to take at 6 years old.
I've never found the "it could be worse" philosophy inspiring. If you meet a man who has no feet, it doesn't take away your need for shoes.
totally. Although, in the "difficult for a kid to deal with" category, I know the time in my life when I stopped telling people I have MD and started telling the specific disease I have (as one, everyone has heard of, and the other, nobody has heard of). And that was at a Boy Scouts Jampboree. I was walking to the outhouse, and a scout master from another troop asked what happened. I told him I have MD, his response (I swear to god, his words still ring in my ears 30 years later) "Oh, that sucks, that means you are going to die soon, huh?" Thankfully I knew what was up with my particular flavor of MD. But yeah, there are idiots all around.
{{{Sean}}} I'm sorry about your grandmother, and so much ~ma to your friend and his family.
"Oh, that sucks, that means you are going to die soon, huh?" Thankfully I knew what was up with my particular flavor of MD. But yeah, there are idiots all around.
People suck.
Oh, Sean. I'm so sorry. Strength and love to your family and that of your friend, and especially you.
omnis, I am gobsmacked. That is horrifying.