I don't really have a security blanket... unless you count Mr. Pointy.

Buffy ,'Lessons'


Natter 65: Speed Limit Enforced by Aircraft  

Off-topic discussion. Wanna talk about corsets, pandas, duct tape, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


P.M. Marc - Mar 17, 2010 4:19:33 pm PDT #16969 of 30001
So come, my friends, be not afraid/We are so lightly here/It is in love that we are made; In love we disappear

I'm glad the appointment went well, Kat.

Just bought this so I can have pretty toenails for the wedding I'm going to in April. Also want to try to find a polish that won't kill my fragile nails.

What's your nail fragility? Jilli's having good luck taking biotin supplements for her nails. I can't speak to it, as I think it would make me break out, but biotin and glass files (which I can speak to, and which are awesome) are the advice I see on the nail board all the time.


Sheryl - Mar 17, 2010 4:23:43 pm PDT #16970 of 30001
Fandom means never having to say "But where would I wear that?"

Timelies all!

I'm wearing green(though I'm not at all Irish). Green(at least the darker shades) looks good with my coloring. Anyhow, we did our traditional St. Patrick's Day activity, which is going to a dive bar to see a friend perform.


sarameg - Mar 17, 2010 4:27:55 pm PDT #16971 of 30001

Miss Mary Contrary did not wear green. You can't make me.

Glad the appointment went well. It's sort of different to have a formal shorthand to describe Grace being Grace.

I wore my slip on sandals to the pool. There was that bit of latent warmth in the air even after the sun set. 2 days, 17 hours.


brenda m - Mar 17, 2010 4:30:35 pm PDT #16972 of 30001
If you're going through hell/keep on going/don't slow down/keep your fear from showing/you might be gone/'fore the devil even knows you're there

My (totally made-up) braised cabbage with (Tofurkey) kielbasa is awesome.


Kat - Mar 17, 2010 4:31:14 pm PDT #16973 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

So the appointment went better than you worried, Kat? Good.

Hmmm.... not better. No. We didn't refer her; her doc at TK was worried about her habit of banging her head and other sensory/self stim behaviors. I don't worry about the head-banging as on occasion she will stop and watch to see if you respond. It seems partially self-stim, partially boredom, partially attention seeking behavior. I think her TK doctor was worried about autism spectrum disorders. And I can say with relative certainty that Grace's issues aren't that.

I think a CP diagnosis makes sense and it addresses what we knew to be true (developmental delays as a result of brain damage). It's just that I never considered it for Grace because her issues are NOT as severe as you picture when you think of CP around motor stuff.

I think I'm bemused by the whole thing because in the 3 years when she has seen a billion specialists, maybe this is the first time I've heard CP (though I'm sure that it was mentioned in the brain damage talk we had at the NICU). Maybe it was so clear to everyone else that no one felt compelled to comment, but it took me off guard. And in the clinic, I though he meant CF and was like, "No. She doesn't have that. We've done the sweat test etc." and the doc had to be like, "no, not cystic fibrosis (dummy). cerebral palsy."


Kat - Mar 17, 2010 4:31:53 pm PDT #16974 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

Can I also mention that my kid is living up to his Asian-Irishness as his dinner has been corned beef over sticky rice?


sarameg - Mar 17, 2010 4:33:31 pm PDT #16975 of 30001

Ahahah.

How I wish I could make it out there this month. THREE.


Kat - Mar 17, 2010 4:41:51 pm PDT #16976 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

We wish you could make it too!


Amy - Mar 17, 2010 4:46:34 pm PDT #16977 of 30001
Because books.

I think I'm bemused by the whole thing because in the 3 years when she has seen a billion specialists, maybe this is the first time I've heard CP

It took me by surprise when you said it! I think my reaction was, wouldn't they know that already? But maybe, like you said, everyone thought it was assumed.

It's probably a useful thing for the exact reason sara mentioned.


Kat - Mar 17, 2010 4:56:05 pm PDT #16978 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

It clearly took me by surprise too. In fact, so much so that after, the doctor came back to the waiting room and took me back to a clinical room to explain why he thought it was CP and how it was necessary to call it CP to get the services Grace will need.

I mean, the definition fits

"Cerebral palsy, also referred to as CP, is a term used to describe a group of chronic conditions affecting body movement and muscle coordination. It is caused by damage to one or more specific areas of the brain, usually occurring during fetal development; before, during, or shortly after birth; or during infancy."

So why wouldn't it fit? But yes surprised.