Actually not needing validation right now, but thank you.

Buffy ,'Lies My Parents Told Me'


Natter 64: Yes, we still need you  

Off-topic discussion. Wanna talk about corsets, duct tape, or physics? This is the place. Detailed discussion of any current-season TV must be whitefonted.


Kat - Jul 30, 2009 2:52:58 pm PDT #1417 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

Any Gap and Gap Family Store people out there? If you'd like to do a Friends and Family thing, here's a card. 30% off starting today for 4 days and 5% goes to Donors Choose: [link]


Lee - Jul 30, 2009 2:54:57 pm PDT #1418 of 30001
The feeling you get when your brain finally lets your heart get in its pants.

Think of an FCM, Perkins. That'll help the day go by.

How about David Tennant, John Barrowman, Gareth David-Lloyd

F Barrowman, C David-Lloyd, M Tennant


Barb - Jul 30, 2009 2:55:55 pm PDT #1419 of 30001
“Not dead yet!”

Barb, I'd be happy to hand on a Groovy Girl to Grace.

Excellent! Gotcha on the list, Kat!

This isn't normal parenting stuff and = scary to me. I am not responsible enough or adept enough to be in charge of this stuff.

Yeah, it's scary, but you already do a metric assload of stuff that to me, as a parent, would be scary and you do it well. I figure you'll get this down too.


Barb - Jul 30, 2009 2:58:05 pm PDT #1420 of 30001
“Not dead yet!”

And Kat, could you zip me your mailing addy again? I can't find it right now.


sumi - Jul 30, 2009 2:59:33 pm PDT #1421 of 30001
Art Crawl!!!

I'm back at the office.

Got home - dug through my purse.

No house keys.

Dumped out my purse.

No house keys.

Walked back to the office. . . I left my housekeys in the storage closet.

Now I'm just going to recover a bit from the walk before heading back home.

Annoying.


Kat - Jul 30, 2009 2:59:37 pm PDT #1422 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

Lots of people have been like, "oh are you doing the training so you can take Grace home?" Um. Not yet, no.

Our plan is like a year plan, maybe. She's been off the vent for 3 weeks, now. I'd like the being off the vent to stick and I'd like to make it through the next flu season with the option of getting her back on the vent if she needs it. And in terms of respiratory stuff, I'd like her not to need the supplemental oxygen she's getting and I'd also like for her to have worked out the Speaking Valve.

And I'd like her feeds to not be spread out over 3 hours (as they currently are). In fact, if we could get her to take a 15 minute bolus, then she might be ready to come home.

The vent was huge. But she's got a long way to go.


Vortex - Jul 30, 2009 3:03:57 pm PDT #1423 of 30001
"Cry havoc and let slip the boobs of war!" -- Miracleman

How about David Tennant, John Barrowman, Gareth David-Lloyd

I HAVE to chuck one of them. Okay.

F (the ever living shit out of) John Barrowman, C- David Tennant (sorry, boo! I love you, just not as much as the others) M- Gareth David Lloyd.


Amy - Jul 30, 2009 3:05:33 pm PDT #1424 of 30001
Because books.

Explain a 15-minute bolus, Kat?

And I heartily concur with Barb -- you'll get all this stuff down. But you're smart to wait a bit and make sure you're doing it at the right time.


Kat - Jul 30, 2009 3:18:36 pm PDT #1425 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

Up until now, Grace has gotten 150 mL of formula dumped into her tummy over 3 hours, with an hour off. So she's been hooked to a pump to regulate that. We're working towards 150 mL over two hours now. And then we'll work on 150mL over an hour.

The goal is to gradually increase her stomach capacity so that she can be fed 150 mLs or whatever in 15 minutes rather than slowly over the course of hours because it will be another machine that she can spend more time disconnected from.


Kat - Jul 30, 2009 3:21:30 pm PDT #1426 of 30001
"I keep to a strict diet of ill-advised enthusiasm and heartfelt regret." Leigh Bardugo

There's a lot of pressure to go home now, from all quarters. If I had a buck for everytime I've answered, "Is she coming home soon?" I could pay for one day of her care.

But we need her to be as stable as possible and as least intensive as possible and we want to make sure that we know we can handle the care. Plus we need time to get the system rolling for special ed services, in home nursing, respite care and everything else that has to come in place. If we wait to bring her home after she is 3, then the social worker will have to help us with the school stuff we'll need.

Also, I'd rather bring her home when we are off for summer and when there are fewer infections running around.