No longer a grade whore - now a soup whore. That's my vw.
On the subject of evil PowerPoints (what?), K-Bug has to do them frequently for school. She did one on histiocytosis (the rare blood disease that she has) that came out very nice...I am so proud of her. All her treatment happened before she was 3, so she only knows of it through the stories we tell. It was good to have her research the disease herself and learn more about it. I get to be a visual/vocal aid for her presentation...after she gives the facts, I get to talk about the reality of discovering your kid has an orphan disease that doctors know very little about.
t buttinsky
vw, said she was having an otherwise rough day, regardless of the soup going pear-shaped. I'm pretty sure when vw's not having a bad day, she knows bad soup isn't going to be a big deal to Emily, and isn't a big deal to vw. If I were having a crappy day, said so, and then vented about my bad soup, and then people were teasing, it's possible I'd be crying right now, reading this thread. ijs.
t /butt
I get to talk about the reality of discovering your kid has an orphan disease that doctors know very little about.
What's an orphan disease?
Cindy, are you saying that you know vw is upset by the discussion here, or that you worry she might be?
vw, I got your giftie yesterday. I'm very excited to send it to you!
Yay! I can’t wait to get it.
Good point. Who wouldn't want to grope vw?
Um…you haven’t seen me lately. I’ve gotten FAT.
Yeah, I would totally eat vw's F-minus soup based on previous calibrations of vw's standards.
Sometimes they’re not so far off. Today’s was pretty accurate.
No longer a grade whore - now a soup whore. That's my vw.
That’s me. Always MG’s girl.
vw, said she was having an otherwise rough day, regardless of the soup going pear-shaped. I'm pretty sure when vw's not having a bad day, she knows bad soup isn't going to be a big deal to Emily, and isn't a big deal to vw. If I were having a crappy day, said so, and then vented about my bad soup, and then people were teasing, it's possible I'd be crying right now, reading this thread. ijs.
I
t heart
Cindy. If I had seen this an hour ago, it probably would have made me cry. But, I'm doing a little better, after getting out of the house and going to exercise. Although, Em says I'm still a little cranky.
It has been a rough day, though. I think all the stress of the last week has just finally caught up to me, and I had a breakdown today...cried for about 45 minutes. I had the realization that the reason I haven't made my GYN appointment is because I'm embarrassed at how much weight I've gained. And the reason I haven't treated myself to the massage I promised myself? Same thing. Also, my face is so broken out with pimples, and this is after the third topical medication change along with face care regimine change, etc. I'm so frustrated. I feel fat and ugly. I'm embarrassed to be seen. Makeup doesn't even cover the zits anymore. I've had to buy all new clothes. And the diet doesn't seem to be making a dent yet, and I've been working so hard on it...what with all the extra cooking and whatnot.
Also, I'm dreading going to therapy tomorrow, and I don't normally dread therapy. But, I asked her to write a letter to work, because I'm taking a few anxiety-related days, and she won't. Which, of course, to my brain means that I must be fucking up somehow by taking these days, 'cause she's never refused to write a letter before. So, now I'm embarrassed to go to the one place I usually feel safe. And I'm dreading going back to work, but probably won't even get to talk about that in therapy tomorrow, because I'll spend the whole session talking about how much I was dreading coming to therapy.
And there you have it. A total brain dump.
Val, I'm sorry things have been so rough recently. I wish I could make things a bit easier for you. Let me just say that I really empathize with the feeling too fat to get dressed thing. {{{}}}
Although, Em says I'm still a little cranky.
Just to clarify, she said she was cranky, I said, "I know." Just so y'all don't think I'm going, "Hey, vw, I know you're having a rough day, but Jesus, you're cranky!" Cause... I try not to do that, for fear of fully justified bitch-slapping.
I clearly worded that badly. Of course Emily would never just tell me I was cranky. I should have said, "she agreed I was still cranky."
huh. I never doubted that vw's soup had gone wrong. She's a cook. and the results are there in front of you. If it had been edible , but not what she expected , she would have said something along that line. But I think a good cook has to have a spectacular flop or 7. Got to admit I am wondering about the recipie. Was it a south beach recipie ? or someone elses low carb recipie? Esp since my version - which is not low carb, but not that high either, is one I invented.
That’s me. Always MG’s girl.
YAY!!!
What's an orphan disease?
There are many diseases where docs don't know the cause or what will make it go away. They can only treat "outbreaks". The diseases are typically rare, so there are not a lot of cases to study. With all the variations of Histiocytosis, it affects just 1 in 200,000 kids a year. When K-Bug was first diagnosed, they had quoted 1 in 500,000 to me.
